Edit STARDIT: 0202212010629

Standardised Data on Initiatives (STARDIT) is a standardised way to share information about who was involved in an initiative, what was done, what was learned and any impacts which occurred.^[1]

It is designed to be flexible, so it can be easily adapted to be useful across all disciplines, including health, environment, basic science, policy and international development. STARDIT reports will be shared open access (in the public domain), using machine readable linked-data.^[1]

Initiative summary and context

Report information

Inputs: Human, material and other involvements

Outputs: Impacts, outcomes, learning and data

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== PRISMA-ScR Checklist for DOI: 10.3389/fpubh.2019.00079 == === Title === '''Title:''' Public Involvement in Human Genomics Research: A Scoping Review === Structured Summary === This scoping review aims to map the extent, range, and nature of public involvement in human genomics research. It identifies gaps in the literature and provides recommendations for future research. === Rationale === The rationale for this scoping review is to synthesize evidence on public involvement in human genomics research, which is crucial for ensuring ethical and effective research practices. === Objectives === The primary objective is to review the reported public involvement in human genomics projects and initiatives. === Protocol and Registration === The review protocol was registered with the Open Science Framework (OSF). === Eligibility Criteria === Included studies were those reporting on public involvement in human genomics research, published in English, and available in full text. === Information Sources === Databases searched included PubMed, Scopus, and Web of Science. === Search === A comprehensive search strategy was developed and executed in consultation with a librarian. === Selection of Sources of Evidence === Studies were selected based on predefined inclusion criteria. Two reviewers independently screened titles and abstracts. === Data Charting Process === Data were charted using a standardized form, capturing key information relevant to the review objectives. === Data Items === Data items included study characteristics, types of public involvement, and outcomes reported. === Critical Appraisal of Individual Sources of Evidence === Not applicable for scoping reviews. === Synthesis of Results === Results were synthesized narratively, highlighting the extent and nature of public involvement in human genomics research. === Selection of Sources of Evidence === A flow diagram was used to illustrate the selection process. === Characteristics of Sources of Evidence === Characteristics of included studies were summarized in a table. === Critical Appraisal within Sources of Evidence === Not applicable for scoping reviews. === Results of Individual Sources of Evidence === Key findings from individual studies were summarized. === Synthesis of Results === The synthesis identified common themes and gaps in the literature. === Summary of Evidence === The review found that public involvement in human genomics research is varied, with different levels of engagement and reported outcomes. === Limitations === Limitations include potential publication bias and the exclusion of non-English studies. === Conclusions === The review concludes that while public involvement in human genomics research is recognized as important, there is a need for more consistent reporting and evaluation of its impact. === Funding === The study was funded by a PhD student scholarship. This PRISMA-ScR Checklist for DOI: 10.3389/fpubh.2019.00079 was generated with a commercial AI service using the prompt 'Create a PRISMA scoping review report (https://pubmed.ncbi.nlm.nih.gov/30178033/) for https://doi.org/10.3389/fpubh.2019.00079

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