STARDIT/Developing a Stakeholder Participatory and Inclusive Research Framework for the Olga Tennison Autism Research Centre (OTARC): Difference between revisions

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|con_rec=Identified and invited by committee co-chairs. This will be revised to incorporate Autvisors in decision-making at end of 2024.
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Latest revision as of 05:44, 2 October 2024

Description: OTARC Autvisory Committee
Dates

State ongoing
Start 2022-10-14
Form updated 2024-10-02

Report authors
Jack Nunn (link)
0000-0003-0316-3254
Drafted early version of STARDIT report
Perrin Date
p.date@latrobe.edu.au
Main report author
Location
Australia
Aims
Establishing a Terms of Reference outlning the committee's purpose, including ways of working.
Co-develop an inclusive research framework.
Establishing a pool of Autistic people ('Community Research Partners') who have consented to be contacted to co-design research with.
Keywords
Autism
Inclusive Research
stakeholder involvement
Neurodivergent
Autistic
Category
research

Inputs

group of individuals

Autvisors (10)


Task: Co-developing ToR and ways of working, and co-developing a process for involving Autistic people in autism research
Recruitment: Identified and invited by committee co-chairs. This will be revised to incorporate Autvisors in decision-making at end of 2024.
Compensation: paid
Declared interests: Personal and professional
Impact: empowerment
group of individuals

Co-chairs (2)


Task: Preparation of agenda, compiling feedback, addressing suggestions, organising payment, organising meetings, co-chairing meetings..
Barriers: Time/workload
Compensation: other(in-kind, contribution to this initiative done during work time.)
Declared interests: Professional and personal
funding


OTARC in-kind funding
time


Co-chair time months

Co-chair time on committee business and related co-design work.
time


Administrative support days

scheduling meetings, assistance with administrative aspects.

Outputs and impacts

publication/report/document
Stage: February 2024
Terms of Reference


Co-developed ToR outlining the work the committee is undertaking or will undertake, incl. ways of working.
publication/report/document
Stage: February 2024
A legal-approved committee letter of appointment for the ‘Stakeholder Reference Group’


Impact: Outlines clear relationships between La Trobe University and Committee members (including La Trobe's Code of Conduct, confidentiality, remuneration)

This letter was written and approved the Legal team at La Trobe university in order to formally appointment Committee members
publication/report/document
Stage: March 2024
Payment terms/options defined


Impact: Ability to offer multiple payment options with a low administrative burden to committee members.

Developed by OTARC's grants officer following discussions with OTARC's Research Operation Manager and relevant personnel in FInance.
publication/report/document
Stage: drafting
OTARC's Inclusive Research Framework

Impact: Process document that will serve as a guide for OTARC staff and students wanting to develop autism research with Autistic Community members. This will ensure a consistent approach across OTARC, informed by Autistic people.
other
Stage: Drafting
Community Research Partner Registration Form


Impact: This will be an accessible and informative registration form that will enable us a pool of diverse individuals (all Autistic) who can be contacted to co-design research, ensuring diverse perspectives are incorporated in our research.

Sign-up form for individuals who wish to co-design research with OTARC staff and students
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