STARDIT/Involve Australia Prospective Report 2021-2023: Difference between revisions

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{{item
{{item
|description_parameter=Involve Australia will investigate the current public and health consumer involvement landscape in Australian healthcare research and use resources that currently exist to develop guidelines specifically for genomic research. Unlike pre-existing guidelines, Involve Australia will build its guidelines from the health consumer perspective. Ensuring patient and carer needs are built into genomic researchers’ consumer involvement strategies before projects begin provides a standard other fields of h
|description_parameter=Involve Australia will investigate the current public and health consumer involvement landscape in Australian healthcare research and use resources that currently exist to develop guidelines specifically for genomic research. Unlike pre-existing guidelines, Involve Australia will build its guidelines from the health consumer perspective. Ensuring patient and carer needs are built into genomic researchers’ consumer involvement strategies before projects begin provides a standard other fields of h
|aim_parameter={{aim parameter|To produce a set of health consumer involvement guidelines and resources for genomic research from the health consumer perspective.}}{{aim parameter|To conduct a landscape analysis of current health consumer involvement resources in Australia and house these online for wider distribution.}}{{aim parameter|Conduct training workshops to ensure genomic researchers learn how to effectively involve health consumers in their research.}}
|aim_parameter={{aim parameter|To produce a set of health public involvement guidelines and resources for genomic research, prioritising the public perspective}}{{aim parameter|To conduct a landscape analysis/scoping review of current public involvement resources in Australia and house these online for wider distribution.}}{{aim parameter|Conduct learning and development interventions to ensure genomic researchers learn how to effectively involve the public in their research}}
|keyword_parameter={{keyword parameter|health consumer}}{{keyword parameter|genomics}}{{keyword parameter|guidelines}}{{keyword parameter|citizen science}}{{keyword parameter|patient involvement}}{{keyword parameter|consumer involvement}}
|keyword_parameter={{keyword parameter|health consumer}}{{keyword parameter|genomics}}{{keyword parameter|guidelines}}{{keyword parameter|citizen science}}{{keyword parameter|patient involvement}}{{keyword parameter|consumer involvement}}{{keyword parameter|public involvement}}{{keyword parameter|learning}}{{keyword parameter|education}}{{keyword parameter|impact}}{{keyword parameter|researcher}}{{keyword parameter|professional development}}
|start_date_parameter=2021-07-26
|start_date_parameter=2021-07-26
|ongoing=ongoing
|ongoing=ongoing
Line 8: Line 8:
|author_parameter={{author parameter
|author_parameter={{author parameter
|aut_nam=Isabella Sherburn
|aut_nam=Isabella Sherburn
|aut_con=contact
|aut_eml=isabella.sherburn@mcri.edu.au
}}{{author parameter
|aut_nam=Tiffany Boughtwood
|aut_ids=0000-0002-9634-3731
|aut_con=non contact
}}{{author parameter
|aut_nam=Jack Nunn
|aut_ids=0000-0003-0316-3254
|aut_con=non contact
}}{{author parameter
|aut_nam=John Cannings OAM
|aut_con=non contact
}}{{author parameter
|aut_nam=Monica Ferrie
|aut_con=non contact
}}{{author parameter
|aut_nam=Keri Finlay
|aut_con=contact
|aut_eml=keri.finlay@vcgs.org.au
}}{{author parameter
|aut_nam=Anne McKenzie AM
|aut_ids=0000-0002-5596-8495
|aut_con=non contact
}}{{author parameter
|aut_nam=Sean Murray
|aut_con=non contact
}}{{author parameter
|aut_nam=Gregory Pratt
|aut_ids=0000-0001-9908-773X
|aut_con=non contact
|aut_con=non contact
}}{{author parameter
}}{{author parameter
|aut_nam=Tiffany Boughtwood
|aut_nam=Fiona Russo
|aut_ids=0000-0002-1652-2589
|aut_con=non contact
|aut_con=non contact
}}
}}
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|con_url=https://www.australiangenomics.org.au/
|con_url=https://www.australiangenomics.org.au/
|con_sta=2021-07-26
|con_sta=2021-07-26
|con_des=Australian Genomics has built a large, inclusive, multidisciplinary genomic network, connected to international genomic initiatives. This network is recognised as instrumental in the successful implementation of genomics into healthcare.
}}{{contributor parameter
}}{{contributor parameter
|con_typ=group of individuals
|con_typ=group of individuals
Line 25: Line 57:
|con_rol=Progress activities for Involve Australia and provide expert input
|con_rol=Progress activities for Involve Australia and provide expert input
|con_sta=2021-07-26
|con_sta=2021-07-26
}}
|input_parameter={{input parameter
|inp_typ=funding
|inp_inp=NHMRC 2000001, Australian Genomics Grant Program
|inp_des=Funding for salaries in support of initiative: 1x Involve Australia Coordinator (3 years), 1x Project Officer support (3 years)
}}{{input parameter
|inp_typ=time
|inp_inp=2.75
|inp_timespan=years
|inp_des=Involve Australia Coordinator (0.4FTE)
}}{{input parameter
|inp_typ=time
|inp_inp=3
|inp_timespan=years
|inp_des=Involve Australia Project Officer (0.8FTE)
}}{{input parameter
|inp_typ=time
|inp_inp=3
|inp_timespan=years
|inp_des=Working group contributor, Managing Director of Australian Genomics
}}{{input parameter
|inp_typ=time
|inp_inp=3
|inp_timespan=years
|inp_des=Working group contributors x7, 60 hours total (~20 hours per year)
}}
|output_parameter={{output parameter
|out_typ=publication/report/document
|out_out=Landscape analysis/scoping review
|out_des=Report detailing the current landscape of consumer involvement in Australian genomic research
}}{{output parameter
|out_typ=publication/report/document
|out_out=Guidelines for consumer involvement in genomic research
|out_des=A set of guidelines, adhering to NHMRC guideline standards, that aims to improve effective involvement of health consumers in genomic research.
}}{{output parameter
|out_typ=other
|out_out=Online repository of health consumer involvement resources
}}{{output parameter
|out_typ=learning item
|out_out=Consumer involvement learning and development interventions  for genomic researchers
|out_des=Learning and development interventions for genomic researchers to improve effective and ethical health consumer involvement
}}{{output parameter
|out_typ=publication/report/document
|out_out=Evaluation report
|out_des=Details impact and improvements made to proposed guidelines for consumer involvement in genomic research when used and evaluated in current genomic research
}}
}}
|output_parameter={{output parameter
|output_parameter={{output parameter
|out_typ=publication/report/document
|out_typ=publication/report/document
|out_out=Landscape analysis
|out_out=Landscape analysis/scoping review
|out_des=Report detailing the current landscape of consumer involvement in Australian genomic research
|out_des=Report detailing the current landscape of consumer involvement in Australian genomic research
}}{{output parameter
}}{{output parameter
Line 37: Line 114:
|out_typ=other
|out_typ=other
|out_out=Online repository of health consumer involvement resources
|out_out=Online repository of health consumer involvement resources
|out_acc=Stored online in an open access forum
}}{{output parameter
}}{{output parameter
|out_typ=learning item
|out_typ=learning item
|out_out=Consumer involvement workshop for genomic researchers
|out_out=Consumer involvement learning and development interventions  for genomic researchers
|out_des=Workshops for genomic researchers to improve effective and ethical health consumer involvement
|out_des=Learning and development interventions for genomic researchers to improve effective and ethical health consumer involvement
}}{{output parameter
}}{{output parameter
|out_typ=publication/report/document
|out_typ=publication/report/document

Revision as of 01:44, 30 August 2021

Description: Involve Australia will investigate the current public and health consumer involvement landscape in Australian healthcare research and use resources that currently exist to develop guidelines specifically for genomic research. Unlike pre-existing guidelines, Involve Australia will build its guidelines from the health consumer perspective. Ensuring patient and carer needs are built into genomic researchers’ consumer involvement strategies before projects begin provides a standard other fields of h
Dates

State {{{state_parameter}}}
Start 2021-07-26
Form updated 2021-08-30

Report authors
Isabella Sherburn
isabella.sherburn@mcri.edu.au
Tiffany Boughtwood
0000-0002-9634-3731
Jack Nunn
0000-0003-0316-3254
John Cannings OAM
Monica Ferrie
Keri Finlay
keri.finlay@vcgs.org.au
Anne McKenzie AM
0000-0002-5596-8495
Sean Murray
Gregory Pratt
0000-0001-9908-773X
Fiona Russo
0000-0002-1652-2589
Location
Australia


Aims
To produce a set of health public involvement guidelines and resources for genomic research, prioritising the public perspective
To conduct a landscape analysis/scoping review of current public involvement resources in Australia and house these online for wider distribution.
Conduct learning and development interventions to ensure genomic researchers learn how to effectively involve the public in their research
Keywords
health consumer
genomics
guidelines
citizen science
patient involvement
consumer involvement
public involvement
learning
education
impact
researcher
professional development

Inputs

organisation
Start: 2021-07-26
Australian Genomics (link)


Australian Genomics has built a large, inclusive, multidisciplinary genomic network, connected to international genomic initiatives. This network is recognised as instrumental in the successful implementation of genomics into healthcare.
group of individuals
Start: 2021-07-26
Involve Australia Working Group (10)
funding


NHMRC 2000001, Australian Genomics Grant Program

Funding for salaries in support of initiative: 1x Involve Australia Coordinator (3 years), 1x Project Officer support (3 years)
time


2.75 years

Involve Australia Coordinator (0.4FTE)
time


3 years

Involve Australia Project Officer (0.8FTE)
time


3 years

Working group contributor, Managing Director of Australian Genomics
time


3 years

Working group contributors x7, 60 hours total (~20 hours per year)

Outputs and impacts

publication/report/document

Landscape analysis/scoping review


Report detailing the current landscape of consumer involvement in Australian genomic research
publication/report/document

Guidelines for consumer involvement in genomic research


A set of guidelines, adhering to NHMRC guideline standards, that aims to improve effective involvement of health consumers in genomic research.
other

Online repository of health consumer involvement resources

learning item

Consumer involvement learning and development interventions for genomic researchers


Learning and development interventions for genomic researchers to improve effective and ethical health consumer involvement
publication/report/document

Evaluation report


Details impact and improvements made to proposed guidelines for consumer involvement in genomic research when used and evaluated in current genomic research
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