STARDIT/Involve Australia Prospective Report 2021-2023: Difference between revisions

Revision as of 04:25, 30 August 2021

Description: Involve Australia will investigate the current public and health consumer involvement landscape in Australian healthcare research and use resources that currently exist to develop guidelines specifically for genomic research. Unlike pre-existing guidelines, Involve Australia will build its guidelines from the health consumer perspective. Ensuring patient and carer needs are built into genomic researchers’ consumer involvement strategies before projects begin provides a standard other fields of healthcare research should also meet. Ultimately, this will improve consumer health outcomes and their journey towards better health.

Dates

State {{{state_parameter}}}
Start 2021-07-26
Form updated 2021-08-30

Report authors

Isabella Sherburn
isabella.sherburn@mcri.edu.au

Tiffany Boughtwood
0000-0002-9634-3731

Jack Nunn
0000-0003-0316-3254

John Cannings OAM

Monica Ferrie

Keri Finlay
keri.finlay@vcgs.org.au

Anne McKenzie AM
0000-0002-5596-8495

Sean Murray

Gregory Pratt
0000-0001-9908-773X

Fiona Russo
0000-0002-1652-2589

Location

Australia

Aims

To produce a set of health public involvement guidelines and resources for genomic research, prioritising the public perspective

To conduct a landscape analysis/scoping review of current public involvement resources in Australia and house these online for wider distribution.

Conduct learning and development interventions to ensure genomic researchers learn how to effectively involve the public in their research

Keywords

health consumer

genomics

guidelines

citizen science

patient involvement

consumer involvement

public involvement

learning

education

impact

researcher

professional development

Inputs

organisation

Start: 2021-07-26

Australian Genomics (link)

Australian Genomics has built a large, inclusive, multidisciplinary genomic network, connected to international genomic initiatives. This network is recognised as instrumental in the successful implementation of genomics into healthcare.

group of individuals

Start: 2021-07-26

Involve Australia Working Group (10)

funding

NHMRC 2000001, Australian Genomics Grant Program

Funding for salaries in support of initiative: 1x Involve Australia Coordinator (3 years), 1x Project Officer support (3 years)

time

2.75 years

Involve Australia Coordinator (0.4FTE)

time

3 years

Involve Australia Project Officer (0.8FTE)

time

3 years

Working group contributor, Managing Director of Australian Genomics

time

3 years

Working group contributors x7, 60 hours total (~20 hours per year)

Outputs and impacts

publication/report/document

Landscape analysis/scoping review

Report detailing the current landscape of consumer involvement in Australian genomic research

publication/report/document

Guidelines for consumer involvement in genomic research

A set of guidelines, adhering to NHMRC guideline standards, that aims to improve effective involvement of health consumers in genomic research.

other

Online repository of health consumer involvement resources

learning item

Consumer involvement learning and development interventions for genomic researchers

Learning and development interventions for genomic researchers to improve effective and ethical health consumer involvement

publication/report/document

Evaluation report

Details impact and improvements made to proposed guidelines for consumer involvement in genomic research when used and evaluated in current genomic research

@@ Line 1: / Line 1: @@
 {{item
-|description_parameter=Involve Australia will investigate the current public and health consumer involvement landscape in Australian healthcare research and use resources that currently exist to develop guidelines specifically for genomic research. Unlike pre-existing guidelines, Involve Australia will build its guidelines from the health consumer perspective. Ensuring patient and carer needs are built into genomic researchers’ consumer involvement strategies before projects begin provides a standard other fields of h
+|description_parameter=Involve Australia will investigate the current public and health consumer involvement landscape in Australian healthcare research and use resources that currently exist to develop guidelines specifically for genomic research. Unlike pre-existing guidelines, Involve Australia will build its guidelines from the health consumer perspective. Ensuring patient and carer needs are built into genomic researchers’ consumer involvement strategies before projects begin provides a standard other fields of healthcare research should also meet. Ultimately, this will improve consumer health outcomes and their journey towards better health.
 |aim_parameter={{aim parameter|To produce a set of health public involvement guidelines and resources for genomic research, prioritising the public perspective}}{{aim parameter|To conduct a landscape analysis/scoping review of current public involvement resources in Australia and house these online for wider distribution.}}{{aim parameter|Conduct learning and development interventions to ensure genomic researchers learn how to effectively involve the public in their research}}
 |keyword_parameter={{keyword parameter|health consumer}}{{keyword parameter|genomics}}{{keyword parameter|guidelines}}{{keyword parameter|citizen science}}{{keyword parameter|patient involvement}}{{keyword parameter|consumer involvement}}{{keyword parameter|public involvement}}{{keyword parameter|learning}}{{keyword parameter|education}}{{keyword parameter|impact}}{{keyword parameter|researcher}}{{keyword parameter|professional development}}

STARDIT/Involve Australia Prospective Report 2021-2023: Difference between revisions

Revision as of 04:25, 30 August 2021

Inputs

Outputs and impacts

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