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{{item
{{item
|description_parameter=Participatory action research to involve members of a sibling group in online discussions about how they would like to be involved in future research.
|description_parameter=Participatory action research to involve members of a sibling group in online discussions about how they would like to be involved in future research. The research process was co-designed using a participatory action research method to involve members of a sibling group in the co-design of online discussions to explore future genomic research with members of the group.
|aim_parameter={{aim parameter|involve members of a sibling group co-designing online discussions}}{{aim parameter|involve members of a sibling group in online discussions}}
|aim_parameter={{aim parameter|involve members of a sibling group co-designing online discussions}}{{aim parameter|involve members of a sibling group in online discussions}}
|keyword_parameter={{keyword parameter|STARDIT}}{{keyword parameter|genomics}}{{keyword parameter|research}}{{keyword parameter|donor-conceived}}{{keyword parameter|siblings}}{{keyword parameter|shared-ancestry}}{{keyword parameter|participatory action research}}{{keyword parameter|co-design}}
|keyword_parameter={{keyword parameter|STARDIT}}{{keyword parameter|genomics}}{{keyword parameter|research}}{{keyword parameter|donor-conceived}}{{keyword parameter|siblings}}{{keyword parameter|shared-ancestry}}{{keyword parameter|participatory action research}}{{keyword parameter|co-design}}
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|aut_eml=jack.nunn@latrobe.edu.au
|aut_eml=jack.nunn@latrobe.edu.au
}}{{author parameter
}}{{author parameter
|aut_nam=Marilyn Crawshaw
|aut_ids=0000-0002-2870-0506
|aut_url=https://www.york.ac.uk/spsw/staff/emeritus-and-honorary/marilyn-crawshaw/
|aut_tas=Checked report data
|aut_con=non contact
|aut_con=non contact
}}{{author parameter
|aut_nam=Paul Lacaze
|aut_ids=0000-0002-0902-6798
|aut_url=https://www.monash.edu/medicine/sphpm/about/staff/academic/lacaze
|aut_tas=Checked report data
|aut_con=non contact
}}{{author parameter
|aut_nam=Shirley Brailey
|aut_tas=Checked report data and contributed additional data
|aut_con=non contact
}}{{author parameter
|aut_nam=Barbara Nunn
|aut_tas=Checked report data and contributed additional data
|aut_con=non contact
}}{{author parameter
|aut_nam=Adrianne Smith
|aut_tas=Checked report data and contributed additional data
|aut_con=non contact
}}{{author parameter
|aut_nam=Barry Stevens
|aut_url=https://www.wikidata.org/wiki/Q4864782
|aut_tas=Checked report data and contributed additional data
|aut_con=non contact
}}
|contributor_parameter={{contributor parameter
|con_typ=individual
|con_nam=Jack Nunn
|con_tas=Led research project, involved in co-designing every stage of the process, leading participatory action research process, leading co-design of online surveys, leading co-design of online discussions, analysing feedback from co-design process, leading data analysis
|con_url=https://scholars.latrobe.edu.au/j2nunn
|con_ids=0000-0003-0316-3254
|con_met=leading participatory action research process, leading co-design of online surveys, leading co-design of online discussions, analysing feedback from co-design process, leading data analysis
|con_com=face to face meetings, telecommunications, online text-based discussions, email
|con_cop=other
|con_cot=La Trobe University Postgraduate Research Scholarship
|con_int=biologically related to research participants
|con_sta=2017-01-01
|con_des=Research lead
}}{{contributor parameter
|con_typ=individual
|con_nam=Marilyn Crawshaw
|con_tas=Involved in co-designing every stage of the process, analysing data
|con_url=https://www.york.ac.uk/spsw/staff/emeritus-and-honorary/marilyn-crawshaw/
|con_ids=0000-0002-2870-0506
|con_met=Member of research team
|con_com=email, telecommunications, online text-based discussions
|con_rec=personal introduction from members of sibling group
|con_int=Previous research with members of sibling group, professional interest in research with donor-conceived people
}}
}}
}}
}}

Revision as of 04:01, 7 September 2021

Description: Participatory action research to involve members of a sibling group in online discussions about how they would like to be involved in future research. The research process was co-designed using a participatory action research method to involve members of a sibling group in the co-design of online discussions to explore future genomic research with members of the group.
Dates

State ongoing
Start 2018-10-01
Form updated 2021-09-07

Report authors
Jack Nunn (link)
0000-0003-0316-3254
jack.nunn@latrobe.edu.au
Main report author
Marilyn Crawshaw (link)
0000-0002-2870-0506
Checked report data
Paul Lacaze (link)
0000-0002-0902-6798
Checked report data
Shirley Brailey
Checked report data and contributed additional data
Barbara Nunn
Checked report data and contributed additional data
Adrianne Smith
Checked report data and contributed additional data
Barry Stevens (link)
Checked report data and contributed additional data
Location
Australia
Other IDs
HEC18256: La Trobe University Human Ethics Committee
10.21203/rs.3.rs-100595/v1: DOI
Aims
involve members of a sibling group co-designing online discussions
involve members of a sibling group in online discussions
Keywords
STARDIT
genomics
research
donor-conceived
siblings
shared-ancestry
participatory action research
co-design

Inputs

individual
Start: 2017-01-01
Jack Nunn (link)


ID: 0000-0003-0316-3254
Task: Led research project, involved in co-designing every stage of the process, leading participatory action research process, leading co-design of online surveys, leading co-design of online discussions, analysing feedback from co-design process, leading data analysis
Method: leading participatory action research process, leading co-design of online surveys, leading co-design of online discussions, analysing feedback from co-design process, leading data analysis
Communication: face to face meetings, telecommunications, online text-based discussions, email
Compensation: other(La Trobe University Postgraduate Research Scholarship)
Declared interests: biologically related to research participants


Research lead
individual

Marilyn Crawshaw (link)



ID: 0000-0002-2870-0506
Task: Involved in co-designing every stage of the process, analysing data
Method: Member of research team
Recruitment: personal introduction from members of sibling group
Communication: email, telecommunications, online text-based discussions
Declared interests: Previous research with members of sibling group, professional interest in research with donor-conceived people

Outputs and impacts