0202109070341: Difference between revisions

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|con_typ=individual
|con_typ=individual
|con_nam=Marilyn Crawshaw
|con_nam=Marilyn Crawshaw
|con_tas=Involved in co-designing every stage of the process, analysing data
|con_tas=Involved in co-designing every stage of the process, critically appraising research plan, analysing data
|con_url=https://www.york.ac.uk/spsw/staff/emeritus-and-honorary/marilyn-crawshaw/
|con_url=https://www.york.ac.uk/spsw/staff/emeritus-and-honorary/marilyn-crawshaw/
|con_ids=0000-0002-2870-0506
|con_ids=0000-0002-2870-0506
Line 77: Line 77:
|con_rec=personal introduction from members of sibling group
|con_rec=personal introduction from members of sibling group
|con_int=Previous research with members of sibling group, professional interest in research with donor-conceived people
|con_int=Previous research with members of sibling group, professional interest in research with donor-conceived people
|con_sta=2018-08-01
}}{{contributor parameter
|con_typ=individual
|con_nam=Paul Lacaze
|con_tas=Involved in co-designing every stage of the process, critically appraising research plan, analysing data
|con_url=https://www.monash.edu/medicine/sphpm/about/staff/academic/lacaze
|con_ids=0000-0002-0902-6798
|con_int=PhD co-supervisor of Jack Nunn
|con_sta=2017-01-01
}}{{contributor parameter
|con_typ=group of individuals
|con_grp=Members of the sibling group who did not participate in online discussion
|con_num=2
|con_tas=refining wording of participant information, sharing views and advice about the process, proof-reading documents, providing feedback on surveys, analysing data, informing planning, and providing feedback on planned online discussions
|con_met=participated in co-design process
|con_com=email, commenting on shared documents, telecommunications
|con_rec=email invitation shared by member of sibling group with all known members of sibling group
|con_int=biologically related to other members of sibling group and lead researcher (Jack Nunn)
|con_sta=2018-10-14
|con_end=2018-10-31
|con_des=Members of the sibling group who did not participate in online discussion gave feedback on the planned research, including planned co-design process
}}{{contributor parameter
|con_typ=group of individuals
|con_grp=Members of the sibling group who did participate in online discussion
|con_num=3
|con_tas=refining wording of participant information, sharing views and advice about the process, proof-reading documents, providing feedback on surveys, analysing data, informing planning, and providing feedback on planned online discussions
|con_met=participated in co-design process
|con_com=email, commenting on shared documents, telecommunications
|con_rec=email invitation shared by member of sibling group with all known members of sibling group
|con_int=biologically related to other members of sibling group and lead researcher (Jack Nunn)
|con_sta=2018-10-14
|con_end=2018-10-31
|con_des=Members of the sibling group who did participate in online discussion gave feedback on the planned research
}}
}}
}}
}}

Revision as of 04:14, 7 September 2021

Description: Participatory action research to involve members of a sibling group in online discussions about how they would like to be involved in future research. The research process was co-designed using a participatory action research method to involve members of a sibling group in the co-design of online discussions to explore future genomic research with members of the group.
Dates

State ongoing
Start 2018-10-01
Form updated 2021-09-07

Report authors
Jack Nunn (link)
0000-0003-0316-3254
jack.nunn@latrobe.edu.au
Main report author
Marilyn Crawshaw (link)
0000-0002-2870-0506
Checked report data
Paul Lacaze (link)
0000-0002-0902-6798
Checked report data
Shirley Brailey
Checked report data and contributed additional data
Barbara Nunn
Checked report data and contributed additional data
Adrianne Smith
Checked report data and contributed additional data
Barry Stevens (link)
Checked report data and contributed additional data
Location
Australia
Other IDs
HEC18256: La Trobe University Human Ethics Committee
10.21203/rs.3.rs-100595/v1: DOI
Aims
involve members of a sibling group co-designing online discussions
involve members of a sibling group in online discussions
Keywords
STARDIT
genomics
research
donor-conceived
siblings
shared-ancestry
participatory action research
co-design

Inputs

individual
Start: 2017-01-01
Jack Nunn (link)


ID: 0000-0003-0316-3254
Task: Led research project, involved in co-designing every stage of the process, leading participatory action research process, leading co-design of online surveys, leading co-design of online discussions, analysing feedback from co-design process, leading data analysis
Method: leading participatory action research process, leading co-design of online surveys, leading co-design of online discussions, analysing feedback from co-design process, leading data analysis
Communication: face to face meetings, telecommunications, online text-based discussions, email
Compensation: other(La Trobe University Postgraduate Research Scholarship)
Declared interests: biologically related to research participants

Research lead
individual
Start: 2018-08-01
Marilyn Crawshaw (link)

ID: 0000-0002-2870-0506
Task: Involved in co-designing every stage of the process, critically appraising research plan, analysing data
Method: Member of research team
Recruitment: personal introduction from members of sibling group
Communication: email, telecommunications, online text-based discussions
Declared interests: Previous research with members of sibling group, professional interest in research with donor-conceived people
individual
Start: 2017-01-01
Paul Lacaze (link)

ID: 0000-0002-0902-6798
Task: Involved in co-designing every stage of the process, critically appraising research plan, analysing data
Declared interests: PhD co-supervisor of Jack Nunn
group of individuals
Start: 2018-10-14
End 2018-10-31
Members of the sibling group who did not participate in online discussion (2)


Task: refining wording of participant information, sharing views and advice about the process, proof-reading documents, providing feedback on surveys, analysing data, informing planning, and providing feedback on planned online discussions
Method: participated in co-design process
Recruitment: email invitation shared by member of sibling group with all known members of sibling group
Communication: email, commenting on shared documents, telecommunications
Declared interests: biologically related to other members of sibling group and lead researcher (Jack Nunn)

Members of the sibling group who did not participate in online discussion gave feedback on the planned research, including planned co-design process
group of individuals
Start: 2018-10-14
End 2018-10-31
Members of the sibling group who did participate in online discussion (3)


Task: refining wording of participant information, sharing views and advice about the process, proof-reading documents, providing feedback on surveys, analysing data, informing planning, and providing feedback on planned online discussions
Method: participated in co-design process
Recruitment: email invitation shared by member of sibling group with all known members of sibling group
Communication: email, commenting on shared documents, telecommunications
Declared interests: biologically related to other members of sibling group and lead researcher (Jack Nunn)

Members of the sibling group who did participate in online discussion gave feedback on the planned research

Outputs and impacts

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