0202208100258

Description: The Core Outcome Measures for Improving Care (COM-IC) project aims to identify a suite of outcome measures that are aligned with stakeholder goals; and develop guidelines for implementation that ensure Australia’s efforts to improve the lives of people living with dementia are unequivocally realised. The COM-IC Project will use a participatory co-design strategy to incorporate practical knowledge, experience and preferences of all stakeholders as inputs in each step of the process. The participatory co-design framework will ensure the suite of core outcomes identified and recommended to evaluate dementia interventions and care delivery model are important, relevant, authentic and practical for each stakeholder group.

Dates

State ongoing
Start 2021-01-21
Form updated 2024-04-04

Report authors

Jack Nunn (link)
0000-0003-0316-3254
Main report author

Location

International

URL

https://web.archive.org/web/20220810025315/https://chsr.centre.uq.edu.au/com-ic

Aims

Primary Objective: Development of a comprehensive and appropriate suite of core outcome measures accompanied by guidelines (developed according to NHMRC guideline methodology) to monitor and evaluate impacts of care delivery models at individual, organisation and system levels, that are informed by all stakeholders.

To understand, report and collectively prioritise multiple stakeholders’ preferences on core outcome measures to evaluate success of interventions and care delivery models for people living with dementia

To map the core outcome sets for dementia into the indicators that are routinely collected in the Australian health and aged care systems

To achieve consensus of what to recommend as a suite of core outcome measures for dementia.

To determine best practices in measuring, collecting, curating, evaluating, reporting and translating the recommended suite of core outcome measures for dementia.

To develop methods to monitor the delivery of Commonwealth and State, Health and Aged Care services at the level of Local Hospital Networks.

Category

research

Inputs

individual

Tracy Comans (link)

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ID: 0000-0003-2840-3496
Task: Chief Investigator
Compensation: paid

group of individuals

Stage: Implementation
Start: 2023-05-03

Stakeholder Reference Group (12) (link)

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Task: provide non-binding advice to the research team
Method: Formal group with Terms of Reference
Recruitment: Public link to application form, shared on social media and via email from study team members
Communication: online video calls, Loomio group
Barriers: learning to use a new online tool
Compensation: paid

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The Core Outcome Measures for Improving Care (COM-IC) Stakeholder Reference Group provides non-binding advice to the research team

group of individuals

Interim Stakeholder Reference Group (4)

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Method: Formal group with Terms of Reference
Communication: online video calls, Loomio group
Compensation: volunteer

group of individuals

Stakeholder Panel (15) (link)

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Task: Contribute to discussions about core outcome measures for improving dementia care, ranking outcomes as part of a modified e-Delphi method)
Method: Formal group
Recruitment: Public advert, invitation shared through networks
Communication: Online aysyncronous text-based discussion, video calls, online surveys
Compensation: volunteer
Impact: Influenced the core outcomes selected as part of the project

funding

(link)

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999286.80 (AUD)

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Medical Research Future Fund grant recipients as at 21 January 2022

Outputs and impacts

publication/report/document

Peer reviewed protocol for consensus building with people affected by dementia to develop a set of Core Outcome Measures for Improving Care (COM-IC) (link)

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Free text

Why is this research important?

People living with dementia require services from multiple providers, across all care settings, ranging from primary care (GP and specialist), acute (hospital), allied health and social care. People with young onset dementia and those from culturally and linguistically diverse (CALD) backgrounds often require different types of services. While the ultimate care objective for all stakeholders is better health and quality of life for the care recipients, interventions and care models delivered in different settings and for different populations naturally lead to a wide range of instruments and approaches to report similar outcomes or events and to measure success (clinical efficacy and effectiveness, care quality and efficiency). Different assessment instruments reduce comparability across care models, leading to the slow translation of evidence into practice to improve care quality. It also results in both fragmentation and duplication of service provision across providers, creating inefficiencies in healthcare and aged care systems.

This research aims to increase comparability in dementia outcome measures, improve the consistency of impact measures at all levels of care, decrease lag between research and implementation of best-practice care, thereby improving quality and consistency of care delivery, ultimately improving the experience, health outcomes and quality of life for everyone affected by dementia.