STARDIT/Involve Australia Prospective Report 2021-2023
Description: Involve Australia will investigate the current public and health consumer involvement landscape in Australian healthcare research and use resources that currently exist to develop guidelines specifically for genomic research. Unlike pre-existing guidelines, Involve Australia will build its guidelines from the health consumer perspective. Ensuring patient and carer needs are built into genomic researchers’ consumer involvement strategies before projects begin provides a standard other fields of h
Dates
State {{{state_parameter}}}
Start 2021-07-26
Form updated 2021-08-17
Report authors
Isabella Sherburn
Tiffany Boughtwood
Location
Australia
Aims
To produce a set of health consumer involvement guidelines and resources for genomic research from the health consumer perspective.
To conduct a landscape analysis of current health consumer involvement resources in Australia and house these online for wider distribution.
Conduct training workshops to ensure genomic researchers learn how to effectively involve health consumers in their research.
Keywords
health consumer
genomics
guidelines
citizen science
patient involvement
consumer involvement
Inputs
group of individuals
Start: 2021-07-26
Involve Australia Working Group (10)
Outputs and impacts
publication/report/document
Landscape analysis
Report detailing the current landscape of consumer involvement in Australian genomic research
publication/report/document
Guidelines for consumer involvement in genomic research
A set of guidelines, adhering to NHMRC guideline standards, that aims to improve effective involvement of health consumers in genomic research.
other
Online repository of health consumer involvement resources
Accessibility: Stored online in an open access forum
learning item
Consumer involvement workshop for genomic researchers
Workshops for genomic researchers to improve effective and ethical health consumer involvement
publication/report/document
Evaluation report
Details impact and improvements made to proposed guidelines for consumer involvement in genomic research when used and evaluated in current genomic research