0202411252115
Liverpool Dementia and Ageing Research Forum Description: The Forum was set up in 2019 with the aim to (a) connect different stakeholders in dementia and ageing and co-produce research and to (b) inform and educate.
The Liverpool Dementia and Ageing Research Forum was set up in September 2019 with two underpinning aims: (1) to educate and inform about the latest dementia research and services to anyone with a professional or personal interest in the topic; and (2) to build an interdisciplinary wide network of stakeholders from academic, care provider, policy, Third Sector (voluntary services/charities) and lived experiences backgrounds to co-produce research together. The Forum provides a range of activities to network and collaborate across different stakeholder groups, generate research ideas, jointly apply for research funding and inform and connect members about the latest research, care services and related opportunities
STARDIT ID:
STARDIT ID:
0202411252115
Dates
State ongoing
Start 2019-09-01
Form updated 2024-11-26
Report authors
Location
North West Coast region, Liverpool, (England)
Aims
connect different stakeholders in dementia and ageing and co-produce research
inform and educate
Keywords
dementia
forum
Category
research
Inputs
organisation
National Institute for Health and Care Research Applied Research Collaboration North West Coast (NIHR ARC NWC) (link)
Task: provided administrative support for hosting the annual conference and room bookings for face-to-face networking meetings, and support with public adviser fee payments for those lived experts who become actively involved in specific grant applications.
Compensation: other
group of individuals
Forum members (44)
Task: survey completion, contributing to discussions
Method: members of an established Forum
Communication: online survey, face to face meetings, online video calls
individual
Clarissa Giebel (link)
ID: 0000-0002-0746-0566
Task: designed and set up the Liverpool Dementia and Ageing Research Forum, and designed the evaluation. Drafted the manuscript for the peer reviewed article about this initiative and analysed the survey responses
Outputs and impacts
other
State: Completed
Board game (link)
Impact: used for education
The Dementia Inequalities Game has been created by the University of Liverpool, The Lewy Body Society, and third sector representatives in collaboration with people who have lived experience of dementia. The roll and move style board game takes players on a journey, illustrating barriers that people come up against both pre and post dementia diagnosis as well as the support available and the positive impact this can have. Players can also answer a variety of questions, encouraging teams to consider and discuss issues including the cost of dementia care, and what types of dementia there are including Alzheimer’s disease and Lewy body dementia
publication/report/document
State: Completed
Peer-reviewed article 'A Community of Practice to increase education and collaboration in dementia and ageing research and care: The Liverpool Dementia & Ageing Research Forum' (link)