STARDIT/Co-designing genomics research with donor-conceived siblings

Description: Participatory action research to involve members of a sibling group in online discussions about how they would like to be involved in future research. The research process was co-designed using a participatory action research method to involve members of a sibling group in the co-design of online discussions to explore future genomic research with members of the group.

Dates

State ongoing
Start 2018-10-01
Form updated 2021-09-07

Report authors

Jack Nunn (link)
0000-0003-0316-3254
jack.nunn@latrobe.edu.au
Main report author

Marilyn Crawshaw (link)
0000-0002-2870-0506
Checked report data

Paul Lacaze (link)
0000-0002-0902-6798
Checked report data

Shirley Brailey
Checked report data and contributed additional data

Barbara Nunn
Checked report data and contributed additional data

Adrianne Smith
Checked report data and contributed additional data

Barry Stevens (link)
Checked report data and contributed additional data

Location

Australia

URL

web.archive.org/web/20210907033145/https://assets.researchsquare.com/files/rs-100595/v1/9512e607c918314317ab8f0b.pdf/web/20210907033145/https://assets.researchsquare.com/files/rs-100595/v1/9512e607c918314317ab8f0b.pdf

Other IDs

HEC18256: La Trobe University Human Ethics Committee

10.21203/rs.3.rs-100595/v1: DOI

Aims

involve members of a sibling group co-designing online discussions

involve members of a sibling group in online discussions

Keywords

STARDIT

genomics

research

donor-conceived

siblings

shared-ancestry

participatory action research

co-design

Inputs

individual

Start: 2017-01-01

Jack Nunn (link)

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ID: 0000-0003-0316-3254
Task: Led research project, involved in co-designing every stage of the process, leading participatory action research process, leading co-design of online surveys, leading co-design of online discussions, analysing feedback from co-design process, leading data analysis
Method: leading participatory action research process, leading co-design of online surveys, leading co-design of online discussions, analysing feedback from co-design process, leading data analysis
Communication: face to face meetings, telecommunications, online text-based discussions, email
Compensation: other(La Trobe University Postgraduate Research Scholarship)
Competing interests: biologically related to research participants

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Research lead

individual

Marilyn Crawshaw (link)

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ID: 0000-0002-2870-0506
Task: Involved in co-designing every stage of the process, analysing data
Method: Member of research team
Recruitment: personal introduction from members of sibling group
Communication: email, telecommunications, online text-based discussions
Competing interests: Previous research with members of sibling group, professional interest in research with donor-conceived people