0202111150357
Description: STARDIT report about study protocol 'A Pathway to Precision Medicine for Aboriginal Australians
Background: Genomic precision medicine (PM) utilises people’s genomic data to inform the delivery of preventive and therapeutic health care. PM has not been well-established for use with people of Aboriginal and Torres Strait Islander ancestry due to the paucity of genomic data from these communities. We report the development of a new protocol using co-design methods to enhance the potential use of PM for Aboriginal Australians. (2) Methods: This iterative qualitative study consists of five main phases. Phase-I will ensure appropriate governance of the project and establishment of a Project Advisory Committee. Following an initial consultation with the Aboriginal community, Phase-II will invite community members to participate in co-design workshops. In Phase-III, the Chief Investigators will participate in co-design workshops and document generated ideas. The notes shall be analysed thematically in Phase-IV with Aboriginal community representatives, and the summary will be disseminated to the communities. In Phase-V, we will evaluate the co-design process and adapt our protocol for the use in partnership with other communities. (3) Discussion: This study protocol represents a crucial first step to ensure that PM research is relevant and acceptable to Aboriginal Australians. Without fair access to PM, the gap in health outcome between Aboriginal and non-Aboriginal Australians wil
Dates
State ongoing
Start 2019-01-02
Form updated 2021-11-15
Report authors
Location
New South Wales, Australia
Other IDs
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Aims
The development of a new protocol using co-design methods to enhance the potential use of Precision Medicine for Aboriginal Australians.
improving research and service design
health services designed for and with Aboriginal people
develop Aboriginal health workforce development strategies to deliver health care in a culturally safe manner.
closing the health gap for Aboriginal Australians
Keywords
co-design
precision medicine
personalised medicine
Aboriginal health
participatory research
genomics
Aboriginal and Torres Strait Islanders
Australian
Category
research
Inputs
group of individuals
Academic investigators (10) (link)
Task: Project design, ethics applications, planning and delivering co-design processes analysing data from co-design activities
Method: formal investigator team, Project Advisory Committee, formal meetings, email discussions, commenting and editing documents, teleconferences, face to face meetings (when required)
Recruitment: invitation by Poche Centre staff
Communication: face to face meetings, online meetings, emails, shared online documents
Compensation: other(Academic investigators were a mixture of paid and volunteer)