Reporting PPI activities with children and young people in the design and conduct of NIHR funded paediatric research: A framework analysis

Description: This is a STARDIT report about a scoping review of how patient and public involvement with children and young people is reported in NIHR-funded research projects

Dates

State ongoing
Start 2022-01-31
End 2022-12-29
Form updated 2023-11-18

Report authors

Jennifer Preston (link)
https://orcid.org/0000-0003-4800-234X
Main author

Emma Dalyrimple
Checked report data

Giovanni Biglino (link)
0000-0003-0413-149X
Checked report data and contributed additional data

Victoria Harbottle (link)
0000-0003-1731-464X
Checked report data and contributed additional data

Location

United Kingdom

URL

https://doi.org/10.54985/peeref.2210p8728446

Aims

To explore how children and young people's involvement in the design and conduct of clinical studies is reported

1. What opportunities are offered to CYP, including levels and stages of involvement?

2. Who is involved and how?

3. What are the reported outcomes and impacts of PPI with CYP?

4. How do CYP support the dissemination of research findings?

5. What are the reported challenges and facilitators to involvement?

Keywords

Patient and Public Involvement

Children and Young People

Reporting

Framework Analysis

Impact

Paediatric Health Research

Category

research

Inputs

individual

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Compensation: volunteer