0202607230052
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Involving the Public in Research in Malaysia - 2026 Roundtable with Patient Support Groups Description: This interactive workshop and roundtable, hosted by Cochrane Malaysia immediately after the GIN2026 conference, explored how patients, consumers, communities and the wider public can partner with researchers in shaping research (not just participating in it), and how to begin advancing Public Patient Involvement (PPI) in research design and prioritisation in Malaysia.
STARDIT ID:
STARDIT ID:
0202607230052
Dates
State prospective
Start 2026-09-18
End 2026-09-18
Form updated 2026-07-23
Location
Kuala Lumpur, Malaysia
Aims
Participants understand the different kinds of research the public can be involved in shaping, beyond being a participant or subject
Participants understand how community insights can inform what is researched and how
Participants understand that not all research is equal, and know where to find resources to help appraise sources
Participants identify opportunities for their patient support group to be involved in shaping research
Participants understand STARDIT as a tool to plan and report involvement
Participants consider next steps, including interest in a Community of Practice
Keywords
learning
involvement
research
workshop
patient and public involvement
Malaysia
patient support groups
community of practice
Category
education/learning
Inputs
individual
Jack Nunn (link)
Task: Created or adapted learning resources, planned the session, will deliver the introduction to PPI and take part in the roundtable, for Science for All.
Compensation: other(received one free night of accommodation as in-kind support)
organisation
Science for All
Task: Provided facilitation, learning resources and organisation of delivery
organisation
Cochrane Malaysia
Task: Convened the roundtable, invited Malaysian patient support groups, provided one night of accommodation for the facilitator, and offered to provide training
Compensation: volunteer
time
15 hours
Science for All's time for materials creation, facilitation
Outputs and impacts
knowledge translation
State: Prospective
Roundtable and introduction to PPI planned for approximately 15 representatives of Malaysian patient support groups
Impact: Intended outcomes: reconnect with patient support groups | build shared understanding of public involvement in research design and prioritisation | explore establishing a Community of Practice and future training
publication/report/document
State: Prospective
Open Access facilitation plan and learning resources
STARDIT report information
STARDIT report authors