0202611110228

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Involvement in Evidence Synthesis Advocacy Group Description: The "Involvement in Evidence Synthesis Advocacy Group" is an independent group of volunteers who want patients, carers, the public and other interest-holders to be better involved in evidence synthesis.

Context: The Involvement in Evidence Synthesis Advocacy Group is a new group for anyone with experience of, or interest in, involving patients, the public and other interest holders in evidence synthesis. It was voted to be established by the Cochrane Patient and Public Involvement Network Executive, in October 2026.

Science for All is hosting the sign-up form and the data it collects, pro bono, and is the data controller for that information. Cochrane does not host the form and does not hold the data.

About the Group: It is independent - other organisations may become supporters alongside Science for All and the Cochrane Patient and Public Involvement Network, and the intention is that the group is cross-organisational from the outset.

What it is for: Advocating for better involvement in evidence synthesis across organisations; offering independent advice to organisations; holding on to the knowledge of people who have been involved in evidence synthesis; and offering a development pathway for future leaders.

What is, and is not, on offer: To begin with the group works by email and a shared online document. There are no meetings, no payment and no minimum time commitment. Members take part in a personal capacity.
STARDIT ID: 0202611110228
Dates

State ongoing
Start 2026-10-20
Form updated 2026-11-11

Aims
Advocate for better involvement of patients, the public and other interest-holders in evidence synthesis
Provide independent advice on involvement to organisations
Retain the knowledge and experience of people who have contributed to involvement in evidence synthesis
Offer a development pathway - mentoring, buddying, shadowing and shared work - for people who may take on future leadership roles in involvement
Category
research

Inputs

individual

Jack Nunn (link)



Task: Proposing the group, drafting the Terms of Reference, facilitation, founding member
Compensation: volunteer
individual

Jonathan M. Fuchs (link)



Task: Founding member
Compensation: volunteer
individual

Chris Johnston (link)



Task: Founding member
Compensation: volunteer
individual

Danielle Pollock (link)



Task: Founding member
Compensation: volunteer
group of individuals

Cochrane Patient and Public Involvement Network Executive (link)



Task: Establishing the group by vote, named supporter, reviewing expressions of interest with identifying information removed wherever possible, providing a named liaison, promoting the opportunity through the Cochrane Patient and Public Network newsletter
Compensation: volunteer
organisation

Science for All (link)



Task: Hosting the expression-of-interest form and acting as data controller for the data it collects, hosting the shared working document and public member list, pro bono support
Compensation: volunteer


Outputs and impacts

dataset (open)
State: Prospective
Publicly accessible register of members' declared interests, including conflicting interests published prominently, reported using STARDIT
dataset (open)
State: Prospective
Public record of who the Advocacy Group has advised, on what, and what happened as a result, including the Executive reporting back what it did with the advice and why
dataset (open)
State: Prospective
Public record of decisions, including the numbers for, against and abstaining, and any minority views
dataset (open)
State: Prospective
Publicly accessible list of members, and a public record of the organisations that support the group and what each provides
report
State: Prospective
Published advice and advocacy, including responses to consultations and comments on draft strategies, policies, guidance and papers; contributions to the planned peer-reviewed article on involvement in evidence synthesis and to the Cochrane PPI Strategy 2027-2032

STARDIT report information

STARDIT report authors
Jack Nunn (link)
0000-0003-0316-3254
info@scienceforall.world
creating report

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